Interface

Free ALS assessment calculators

Track ALS over time with validated calculators, free. Measure function, cognition, and quality of life, get a score, and check the evidence behind each one.

How common it is

About 1 in 10 people with ALS have an inherited form. The rest have no known family history.

Source: The ALS Association. About 5 to 10 percent of ALS is familial; the remainder is sporadic.

Close to 33,000 people are living with ALS in the United States, with roughly 5,000 newly diagnosed each year.1 The lifetime risk is about 1 in 350 for men and 1 in 400 for women.2

  1. 1.CDC National ALS Registry. Estimated prevalence of ALS, 2022 to 2030. Mehta P, et al. Amyotroph Lateral Scler Frontotemporal Degener. 2024. DOI 10.1080/21678421.2024.2447919.
  2. 2.Hardiman O, et al. Amyotrophic lateral sclerosis. Eur J Neurol. 2020. PMC7540334.

Understanding ALS

ALS damages the motor neurons that control voluntary movement. Over time it can affect walking, hand use, speech, swallowing, and breathing. Some people also experience changes in thinking and behavior. Because ALS progresses, these calculators are used repeatedly to measure the rate of change.

The most widely used is a functional rating scale a person can complete themselves. Others screen cognition and behavior, or measure quality of life.

ALS assessment calculators

Each one is free. Open it to take the assessment, get a score, and see what it measures and the evidence behind it.

Could a brain-computer interface help?

The Brain-Computer Interface Registry connects people with ALS to trials building new ways to move and communicate. Complete your assessments once, and be matched to trials as they open.

These calculators use validated instruments and are reference information, not a diagnosis.