Free locked-in syndrome assessment calculators
Locked-in syndrome leaves a person awake and aware but unable to move or speak. These validated calculators, free, measure consciousness and the channels that remain.
Living with locked-in syndrome
In one survey, about 7 in 10 people with chronic locked-in syndrome reported being happy.
Awareness and thinking usually remain intact. Many people report a good quality of life, especially once a reliable way to communicate is found.
Understanding locked-in syndrome
Locked-in syndrome most often follows a stroke in the ventral pons, part of the brainstem. Thinking and awareness are usually intact, while almost all voluntary movement is lost, often leaving eye movements as the main way to communicate. It is rare, and a precise prevalence is not well established.1
Because communication may be limited to eye movements, careful assessment matters both to confirm awareness and to find a reliable channel. These calculators measure the level of consciousness and responsiveness.
- 1.Smith E, Delargy M. Locked-in syndrome. BMJ. 2005;330(7488):406-409.
Locked-in syndrome assessment calculators
Each one is free. Open it to take the assessment, get a score, and see what it measures and the evidence behind it.
Could a brain-computer interface help?
The Brain-Computer Interface Registry connects people with locked-in syndrome to trials building new ways to communicate. Complete your assessments once, and be matched to trials as they open.
These calculators use validated instruments and are reference information, not a diagnosis.